I first met Dr Raj when I went for a
rheumatology appointment back at the beginning of the year. Dr Raj was
brilliant, he referred me for a bone scan, I had yet more blood tests
(basically everything he could think of he wanted testing), he examined me, he
referred me to a Fibromyalgia course that is run by professionals. My Mum and I
thought he was great. He was so thorough and kind.
My next experience with him was very
different. Dr Raj went through my bone scan results and told me everything was
fine and there was no inflammation in the joints, which was good news. He then
went through my blood test results and again everything was pretty much normal,
as expected. Dr Raj then went on to tell me that there was nothing serious that
was underlying, which I’d known all along. He told me that I should wean myself
off of all my medications and if I were to get a job and keep my mind active
then all my symptoms should disappear. As you can imagine I was very anger at
this comment. I was actually speechless. I couldn’t believe that this guy was
totally dismissing the fact that I can’t get out of bed in the morning/
afternoon/ all day sometimes. He was dismissing the fact that I am exhausted
all the time and need about 11/12 hours of sleep and all of my sleep is
un-refreshing. He was ignoring the fact that I have M.E.
If I was a younger person, with a parent
that believed every word a Doctor said I could have been in trouble. Giving
this kind of advice to a person with M.E is dangerous. This could make a person
much much worse if they were to follow this advice. Luckily, I have parents
that believe me and believe that I am poorly and that keeping my mind active
isn’t going to make me recover miraculously. Does this silly doctor not think
that if it was that easy I wouldn’t be in bed, I would be back working, doing
what I love and earning a decent wage? Funny enough, at the age of 23 I would
rather be out and about enjoying my life, than in bed most of the time!
M.E and Fibromlyalgia are NOT made up. They
are real conditions that are serious. People can die from these illnesses and
this silly man is dishing out advice that is totally wrong. How can this man be
practicing if he knows nothing about conditions he is supposed to know about?
How is he allowed to give people advice that is dangerous?
My god do I wish Dr Raj was right and that
my symptoms would disappear when I got a job, I would be back in my gymnastics
club quicker than you could say gymnastics, but sadly this man has got it very
very wrong. He does not know anything about either of my conditions and is
therefore totally unqualified to tell me what to do in regards to my health.
I know my body and I know what I need. And
I certainly don’t need some silly doctor telling me what to do!
Take Care my friends and don’t believe
everything you are told,
Rachel xxx
Nearly everyone with ME has experienced something similar at some stage. My most recent encounter was with a doc checking blood flow in my legs (all well, as usual. On paper I'm as fit as a fiddle. ) and she had never even heard of ME!
ReplyDeleteIt is so discouraging when this sort of thing happens.
Our best bet as ME sufferers atm is to support each other as best we can, the way you do with your blogs, and Batteredbook with his tweets and so many other people too, and fight our case for improved medical research and treatment.
Take care of yourself.